My Blog

Jul. 30, 2017

The preceeding months have been a very difficult time for us and we have ended up in extreme financial difficulty and greatly appreciate any donations that are made, but the use of this website is free for all visitors.Wow

I believe now that it may gain more exposure and be of help to anyone in need. Wild

 

Please. not be afraid to speak out if you have issues and need help!Crying

Thank You and enjoy the summer months. Cool

Dec. 14, 2016

The Holidays can be a difficult time for us; not thinking about or being able to remember things, watchings others move around easily and pain free. 

It's important for us to remember that people cannot always see us as we are. I recently was told by someone that my speech problems stood out more than anything. They do not see the visual disturbances, feel or see your pain or any of the other vast amount of problems you may have. They are not always around to  witness your problems with swallowing and choking or they may think that their confusion is somehow the same and your unable to explain how it differs.

Try to get up and move around. Chances are you will see something that you can do, or have thought about doing and forgot. Try a hobby - remember your whole world has changed, maybe your interests have too. You will not know unless you try.

When you are with a group, GET UP! Let them witness your lack of balance, stiffness and inabilities. They are more likely to pick an activity that everyone can do. But they will not know it if you do not get up!

Learn to let go and accept it; I always say "It is what it is" and I let it be and do all I can. Your not going to change it, so go with it and enjoy all you can.

Peace, Love and Happiness to All!

Nov. 14, 2016

It was not a problem for me to speak with my doctor - I wanted to make him aware ASAP!

Some have asked about this, and not too many people can speak freely about there problems.

What I find very helpfull, Is to keep a log of everyting that is happening with me. I print it out and bring it to every visiit. Doing this ensures that you do not forget to bring up something and makes it easier for the doctor to update his record. My neurologist reads mine fully and goes over each individual item on the list; this way he can bring it up and you do not have to start the conversation. He knows of my problem and they ask about it at each visit.

Oct. 27, 2016

I am a member of PAWW (Parkinson's Awareness WorldWide) and through this private group (for Patients and Caregivers) I asked the question, "Is anyone else having issues with Gambling"?

The response was overwhelming; there were so many responses and so many devastating stories from people that never before had any issue. People saying everything from the fact that they had lost so much that they did not know how long or if they could ever repay, to people saying they had lost all including family.

You are not alone! This is very common in people with Parkinson's disease! Please do not make the mistake of thinking you can get control of your finances back. If it were that easy why do we need neurologists, movement disorder specialists, therapists, urologists, etc. to help us control everything else in our body that is loosing control? 

Sep. 21, 2016

At my therapy visit yesterday; I was advised to go to Orthetics and Prosthetics and get fitted for a proper device to help me walk and reduce the risk of injury - I have came very close to falling backwards down stairs.